The Boy Whose Skin Fell Off
2004-03-25 | 50 minutes
Plot Summary
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Cast
Recommendations
-
De Caunes-Garcia - Le meilleur de nulle part ailleurs
-
Six Days of Sistine
-
Re-Cycling
-
Moments: Six
-
The Cave of the Golden Rose 4
-
Golden Slumber
-
Cine Gibi 8: ...Tá Brincando?
-
Farewell Moscow
-
The Cave of the Golden Rose 5
-
Rewind 2: 1996
-
Scooby-Doo! and the Reluctant Werewolf
-
Sanam Re
-
While We're Young
-
Shoshana
-
King of Beggars
-
Dead Over Heels: An Aurora Teagarden Mystery
-
Fight Back to School 3
-
Petals on the Wind
-
(re)kindle